Video portraits of patients, caregivers, donors, and healthcare professionals
This media library brings together video portraits of patients, caregivers, donors, and healthcare professionals.
Each story reflects a life shaped by illness, research, or a commitment to others.
These narratives offer a deeper understanding of rare diseases and highlight the essential role of human connection in care.
A different way to talk about illness
Illness is often told through medical data, statistics, or categories. These approaches are necessary, but they often miss what matters most: people.
Resonant Lives video portraits take a different path. They show patients, healthcare professionals, caregivers, and donors for who they are first and foremost: individuals with a story, doubts, strengths, and a unique way of inhabiting the world.
Each video is an intimate, sincere conversation, designed to be understood by the general public, without pathos or advocacy.
A media library of human portraits
Committed plasma donor Claire explains why this act has been an obvious choice for her for over two decades. Discover how her personal story turned a routine gesture into a source of life for others.
Karen saw her life abruptly stop due to a rare muscular disease that confined her to bed and a wheelchair for almost two years. She rebuilt herself, regained the ability to walk, and even earned her pilot’s license, despite permanent physical limitations.
Living with a rare genetic myopathy, Noëlla experiences progressive muscle weakness. Rather than endure it, she transformed her diagnosis into a driving force, becoming a researcher studying her own condition, combining scientific expertise with patient experience.
A dedicated rheumatologist, Margherita supports patients living with rare inflammatory diseases through a deeply human approach. Through her perspective as a physician, she advocates for a medicine built on listening, research, and collaboration with patients.
Living with Danon disease, a rare condition affecting the heart and muscles, Fanny underwent a heart transplant at the age of 28. By staying in motion, she turns her journey into strength and now supports other patients along their own path.
Who are these portraits for?
These portraits are intended for:
- the general public, to change perceptions of illness,
- the patients and their loved ones, to feel less alone,
- the healthcare professionals, to reconnect with the human meaning of care,
- the associations and institutions, to raise awareness differently.
Want to create a video portrait?
Resonant Lives supports associations, healthcare institutions, and engaged organizations wishing to give a human voice to their cause through authentic video portraits.
If you want to propose a portrait or explore a collaboration, you can contact us directly.